January Update
- February 06, 2025
- by
- spiros
January was a rollercoaster of highs and lows. It began on a high note with fantastic New Year celebrations in New Zealand, but things took a downturn as the month progressed. After struggling significantly following my treatment on the 9th, I found myself battling COVID-19. This led to a rough period, including a trip to the hospital by ambulance and a few days of recovery there. The whole experience was a blur, and I struggled through it all.
Despite the challenges, the month ended on a positive note with a heartwarming,...
December Update
- January 08, 2025
- by
- spiros
December was really a month of trying to focus on the glass half full as opposed to half empty 🙂
Obviously, being diagnosed with cancer again, having an operation that took a bit more to recover from than I expected, and then both immunotherapy and colitis infusions, it was all a bit to process.
The overwhelming...
Treatment Update
- December 19, 2024
- by
- spiros
Putting together my treatment plan involved the coordination of my ENT surgeon, Oncologist, IBS doctors, and the St Vincent’s Ambulatory care team. It’s a powerful reminder of how incredibly fortunate I am to have such an amazing team supporting me in my challenge with cancer. Their expertise and the way they work as...
So it’s cancer (again)
- December 10, 2024
- by
- spiros
Here’s a quick recap of the past couple of weeks:
20 November – Spat up blood
26 November – Surgeon said something’s not right
27 November – PET scan (clear)
2 December – Surgery
10 December – Got the results from surgery and biopsy (bad news)
The...
November Update
- December 07, 2024
- by
- spiros
Apart from the Colitis I have been feeling well, but things started to feel a bit weird mid month. On 20 November I spat up some blood which caused me concern and then on 26 November my surgeon confirmed there was something unusual.
As a result of this my PET...
October Update
- November 03, 2024
- by
- spiros
Not much to report. Colitis has continued to be an issue with a few scans, tests, and infusions. As I write this, it is under control. I am still on 12mg of steroids a day and remain off immunotherapy. On the positive front, I had a successful check-up with my surgeon and have generally...
September Update
- October 06, 2024
- by
- spiros
The month started off with great news on the Cancer front with my tests showing that was NED (no evidence of disease) and continued on the 17th when I had an infusion of infliximab to bring the Colitis under control, however on this although initial reaction was positive, one infusion was not...
August Update
- September 02, 2024
- by
- spiros
Apart from a late night 6 hour trip to emergency to get my tube changed after it became blocked, August has been a rather uneventful, yet full of new things.
My focus has really been to get mind and body in the best possible position to keep Cancer at bay especially since I am currently not...
July Update
- August 07, 2024
- by
- spiros
With the Doctors giving me the all clear I headed off to Greece to my happy place Kastania for a month. The first week I was in the village without the family and then Kirsten and the girls arrived.
Its incredible how 35 degrees day, a siesta in a dark quiet room, the country air...
Quick update on last post
- June 18, 2024
- by
- spiros
Just a quick update on my last post.
Had great news from my operation on Monday that the concerning something in my throat is not cancer which is a massive relief.
I am still having some issues with Colitis from the Immunotherapy so the team has decided that I will stop Immunotherapy treatment for the next 5...
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